Health
AIDS/HIV
Champaign
HIV Support Group (2002 A,P) This group is targeted toward positive individuals, but no one is turned away for wanting to learn. It includes open discussion, socializing, and education. Contact Person: Darrell Scott Email: dscott@c-uphd.org Location: Champaign-Urbana Public Health District Off-Site Clinic, 24 E Green. Champaign Phone: (217) 531-5383 Schedule: Meets last Monday of the month (unless a federal holiday), 1-2:30 p.m.
*Write: Champaign-Urbana Public Health District, 201 Kenyon
Livingston
Pontiac Support Group (2017 F,L) The Pontiac Support Group is for those individuals with an AIDS/HIV diagnosis. The group focuses on supporting these individuals and assisting them in obtaining, sustaining, and succeeding in healthcare. The group will focus on improving an individual’s knowledge of health and reading lab results; tracking improvements; increasing understanding of applicable laws and understanding impacts when disclosure of the diagnosis is mandatory. Meetings are restricted to only those individuals with AIDS/HIV so that those newly diagnosed can focus on self-acceptance as well as education. Attendees will be asked to sign a confidentiality agreement. Adherence Counseling and Peer Services will also be offered. Contact Person: Darrell Scott Email: dscott@c-uphd.org Local Website: http;//wwwc-uphd.org/ Location: Meeting location provided upon proof of diagnosis Phone: (217) 531-5355 Schedule: Meets 3rd Tuesday. 4:00 p.m.
Vermilion
Danville HIV Support Group (2013 F,L) This support group is for individuals dealing with the diagnosis, treatment, stigma, and acceptance of HIV/AIDS. These meetings are confidential and all participants will be asked to sign a confidentiality statement regarding the participants, discussion, and attendees. Meetings vary from having speakers on various topics to open forum meetings where the group discussions are based on attendees’ specific issues. Group activities have been organized from cookouts to holiday pot-lucks. Support group flyers/reminders can be sent to interested parties prior to the meetings. Referral information for case management services or peer navigator services are also offered. Contact Person: Darrell Scott Email: dscott@c-uphd.org Local Website: c-uphd.org Location: Prairie Center, 1222 East Voorhees Danville Phone: (217) 531-5355 Schedule: Meets 2nd Thursday of the month, 11:30am-1:00pm
*Write: Champaign-Urbana Public Health District, 201 W Kenyon Road, Champaign IL 61820
ALS (Lou Gehrig’s Disease)
Central Illinois
ALS (Lou Gehrig’s Disease) United Greater Chicago’s Central IL Support Group (2016 A,P) This organization provides a variety of services to persons living with ALS, their family members, friends and caregivers are welcome to attend the support groups. The groups are an opportunity to meet others, learn about new information and resources, and provide or receive support and encouragement. Guest speakers attend some of our supports groups, and talk about their area of expertise as it relates to individuals living with ALS. Contact Person: Kellie Branch-Dircks Email: kellie@alsunitedchicago.org Format: Online via Zoom Local Website: https://alsunitedchicago.org Phone: (309) 696-7184 Schedule: The meetings are the 2nd Thursday of the month 6:00-8:00 p.m.
*Write: ALS United Greater Chicago, 5315 N Clark St #650, Chicago IL 60640
Central Illinois Support Group: The central Illinois Support Group provides opportunities to share information as well as strategies for preserving the independence and quality of life of both people living with ALS and their caregivers. Participants learn that they are not alone nor without help or hope. Support Group meetings are free and open to all people living with ALS and their caregivers. Contact Person: Kellie Branch-Dircks Email: kellie@alsunitedchicago.org Format: Online via Zoom Local Website: https://alsunitedchicago.org/ Phone: (309) 696-7184 Schedule: The meetings are the 2nd Thursday of the month 6:00-7:00 PM
Champaign
ALS (Lou Gehrig's Disease) United Greater Chicago’s Central IL Support Group (2016 A,P) This organization provides a variety of services to persons living with ALS, their family members, friends and caregivers are welcome to attend the support groups. The groups are an opportunity to meet others, learn about new information and resources, and provide or receive support and encouragement. Guest speakers attend some of our supports groups, and talk about their area of expertise as it relates to individuals living with ALS. Contact Person: Kellie Branch-Dircks Email: Kellie@alsunitedchicago.org Format: Online Via Zoom Local Website: https://alsunitedchicago.org/ Phone: (309) 696-7184 Schedule: The meetings are the 2nd Thursday of the month 6:00-8:00p.m.
*Write: ALS United Greater Chicago, 5315 N Clark St #650, Chicago IL 60640
Always Loved & Supported Bereavement Support Group This is a specialized program to support those who have lost a loved one to ALS. The focus will be on helping those bereaved to cope with their loneliness, how to understand their new roles, and healing ways to manage their emotional pain. Contact Person: Jennifer Beckman, LCSW, CSW-G Email: jennifer@alsunitedchicago.org Format: Online via Zoom Phone: (309) 261-7052 Schedule: Meets 4th Wednesday every month 7:00-8:30 p.m.
Alzheimer’s Disease / Dementia
Champaign
Minds in Motion (2007 F,P) This program enhances the mental, physical, and cognitive functioning of older adults including those diagnosed with early memory loss. Activities include “brain fitness” activities (mental exercises, games, memory enhancement), exercises (taiji, dance, strength, and endurance training), relaxation therapies, creative activities (art, writing, music, and storytelling), social activities, and community events. Family members of individuals with early memory loss focus on self-care while creating positive activities for themselves and their family members. Call to verify meeting times. Contact Person(s): Program Director Sandy Burgener PHD Email: Sandy Burgener- sburgener@illinois.edu Location: First United Methodist Church, 210W. Church St., Champaign Phone: (217) 898-4251 Schedule: Meets Thursday., 10:00am-12:00pm
Women’s Dementia Support Group (2016 F,L) This group is a lay person-led support group for women who are spouses and/or caregivers of a family member with dementia. Leadership is shared among those in attendance. Discussions focus on sharing suggestions for caregiving, available resources, and provision of support to one another. Contact Person: Kathy Vance Email: kvance0618@gmail.com Phone: (217) 493-4228 Schedule: Meets on Monday from 10:30-12:00 p.m.
Macon
Macon Memories Memory Cafe (2015 F,P) This support group is open to caregivers and care-receivers who have been diagnosed with Alzheimer’s or other form of dementia. This social group offers support, socialization and enrichment activities, including memory games, music, art, and other physical games. Education services are also provided. Contact Person(s): Tami Fowler and Becky Stewart Email: Tami: tfowler@maconchd.org Becky: bstewart@maconchd.org Local Website: macouncountyhealth.org Location: Eagle Ridge of Decatur, 875 W. Mckinley Decatur Phone: (217) 423-6988 Schedule: The group meets on the 2nd and 4th Monday at 1:00p.m.
Vermilion
Alzheimer’s Caregiver Support Group (2007 F,P) This group provides education and support for caregivers of people with Alzheimer’s disease. Contact Person: Kim LeLoup Email: gardencourt@libertyvillageofdanville.com Phone: (217) 431-1600 ext 5 Location: Hawthorne Inn, 322 Independence Dr., Danville Schedule: Meets 3rd Thursday., 5:00-6:00 p.m.
*Write: Kim LeLoup-Alzheimer’s Caregiver Support Group, Hawthorne Inn 3222 Independence Dr., Danville IL 61832
Telephone Support Group for Caregivers of Veterans with Dementia (2016 A,P) The VA Illiana Health Care System provides a telephone support group free of charge to anyone who provides care in the home to a Veteran with dementia, or a Veteran who provides care in the home for a family member with dementia. The Veteran must be enrolled in VA, must have a VA primary care physician and a diagnosis of dementia (any type), made by a VA provider. To participate, you must be the person who provides hands-on care to the Veteran. Caregivers will participate in a one hour, once-a-week group telephone call, for six consecutive weeks. The call is toll-free. The group will focus on skill-building in the areas of problem solving and mood management and will provide an opportunity to share with and learn from other group members. Call: 1-855-260-3274
Amputee
Champaign
Central Illinois Amputee Support Group This group provides support for amputees, their family members, friends and care givers. The goal is to provide peer support, interaction and encouragement to all touched by limb loss. Email: nikki@centralillinoisamputees.org Location: Rehab activity Room, 3rd Floor Rehabilitation and Physical Medicine Unit, Carle Foundation Hospital 611 W Park St., Urbana Phone: (217) 663-8064 Schedule: Meets 2nd Wednesday of every month, 6:00 p.m. Website: http://www.centralillinoisamputees.org
Bariatric Surgery
Champaign
Bariatric Support Group (2001 A,P/L) This group is for bariatric surgery patients, past, present, and prospective, and gives a chance to share ideas and concerns, talk about frustrations, celebrate successes, and hear others speak about their experiences. Contact Person(s): Ashley McCartneu. Lindsey Eichelberger and Ann Carroll Email: ann.carroll@carle.com Local Website: carle.org/Events/category/Support-Groups Location: Carle Main Campus, South Clinic 5th Fl., General Surgery Department Urbana Phone: (217) 383-3240 Schedule: Meets 2nd Thursday. Excluding December 6:00-7:00 p.m.
*Write: Ann Carroll, Carle Champaign on Curtis, 1701 W. Curtis Rd., Champaign IL 61821
Brain Injury / TBI
Champaign
Brain Injury Support Group of East Central Illinois (1990 A,P) This group provides support and education individuals who have sustained a traumatic brain injury or acquired brain injury (such as brain tumor, aneurysm, stroke, encephalopathies), as well as to the family members/caregivers. Call to confirm dates and times of meeting and events. Email: dinfo@bridgestherapy.org Local Website: https://carle.org/Events/category/Support-Groups National Website: biail.org Phone: (812)682-0323 Schedule: Meets 2nd Saturday., 10:30 a.m.-12:30 p.m.
Decatur
Brain Injury Support Group of East Central Illinois (1990 A,P) This group provides support and education individuals who have sustained a traumatic brain injury or acquired brain injury (such as brain tumor, aneurysm, stroke, encephalopathies), as well as to the family members/caregivers. Call to confirm dates and times of meeting and events. Email: info@bridgestherapy.org Local Website: https://carle.org/Events/category/Support-Groups Location: St Mary’s Hospital National Website: http://www.biail.org Phone: (812) 682-0323 Schedule: Meets 1st Thursday., 12:00 p.m.-1:00p.m.
Breast Cancer
Champaign
Christie Clinic Breast Cancer Support Group (1997 F,P/L) This group is open to women who have breast cancer, their family members and support persons and others interested in learning more about breast cancer. This wellness-focused group includes breast cancer survivors of all ages and experienced health care professionals. Our goal is to share ideas, provide support, answer questions, and offer solutions to problems for people who are coping with breast cancer. The format of each meeting includes a short presentation by a guest speaker followed by informal group interaction. You may attend as often as you wish, and you can bring along a family member or friend. Contact: Department of General Surgery Location 2nd Fl. Meeting Room Christie on Windsor, 1801 W. Windsor Rd., Champaign Phone: (217) 366-5445 Schedule: Meets 1st Wednesday., 7:00 p.m.
Reach to Recovery (1969 A,P/L) This one-on-one peer support program is for women who have a concern about breast cancer. Trained volunteers who are breast cancer survivors assist newly diagnosed patients, those facing a possible diagnosis, patients experiencing lymphedema, those who have completed treatment, or patients facing a possible recurrence or advanced breast cancer. Contact: American Cancer Society and Claire Sharp Email: claire.sharp@cancer.org National Website: cancer.org Phone: American Cancer Society: (800) ACS-2345 (227-2345). Claire Sharp (309) 688-3480.
Young Survival Coalition (2010 A,L) This group provides support to premenopausal women with breast cancer and their families. The group is affiliated with an international organization that focuses on the issues unique to young women with breast cancer. Spouses, partners, and children are welcome to attend to discuss issues that members face and to socialize. Email: midwestregion@youngsurvival.org Location: Jupiter’s at the Crossing, 2511 Village Green Pl., Champaign National Website: youngsurvival.org Phone: (877) 972-1011 Schedule: Meets last Tuesday., 7:00 p.m.
Vermilion
Breast Cancer Support Group (2013, F,L) This group in the Hoopeston area provides caring and support to women with breast cancer. The co-facilitated group is designed for women to openly share their experiences and feelings, ask questions, and support each other. The group often meets at the Pit Stop at The Fast Lanes Bowling Alley, and welcomes anyone interested in joining for the evening. Meeting dates, locations and times may vary. Contact Person: Pat Foster Email: pjfrn67@hotmail.com Location: Pit Stop at the Fast Lane Bowling Alley Phone: (815) 984-4040 Schedule: 3rd Thursday of each month at 6:00 p.m.
New Horizon Breast Cancer Support Group (2004 F,P) This group, led by breast cancer survivors, provides education and social support. The group is open to all women and men with breast cancer, whether they are newly diagnosed or long-term cancer survivors, and their family members. Guest speakers and fellowship are included in the meeting. Contact: Presence Cancer Center Email: pusmcnewhorizon@prencehealth.org Location: Jocko’s, 305 W. Williams St., Danville Phone: (217) 431-4290 Schedule: Meets 3rd Monday at 6:00 p.m.
Cancer (General)
Champaign
Carle Daytime Cancer Support Group (1998 F,P) This group is an open forum for anyone who has or knows someone with cancer. Email:Kimberly.harden@carle.com Local Website: https://carle.org/classes/support-groups/daytime-cancer-support-group.aspx Location: Carle Cancer Center, 1st Fl. Conference Rm, 509 W. University Ave., Urbana Phone: Contact Social Work at (217)383-4581 or (217) 383-4066 Schedule: Meets 2nd Wednesday, 12:00-1:00 p.m.
Carle Head and Neck Cancer Roundtable Discussion Group – Group II (2007 F,P) This group educates and supports patients and survivors of head and neck cancers, their family, and friends, regardless of where clinical care is received. Contact: Kimberly Local Website: https://carle.org/Events/category/Support-Groups Location: Carle Cancer Center, 1st Floor Conference Room 2nd Floor, 509 W. University Ave., Urbana Phone: (217) 383-4581 Schedule: Meets 4th Wednesday, 2:00-3:00- p.m. *Write: Carle Cancer Center, 509 W. University Ave., Urbana IL 61801
Leukemia/Lymphoma/Myeloma/Transplant Support Group (2007 F,L) This group provides support and education to patients, family members, and friends. Meetings are scheduled based on the needs of the group members. Call for meeting time and location. Contact person(s): Mica Witt and Dan Culkin Email: wittmi@frontier.com Phone: Mica (217) 586-1667 or (217) 898-1018. Dan (217) 898-0362
Vermilion
Cancer Prayer and Support Group (2013 F,L) This group is for anyone, including family members and friends, looking for support during or after involvement with any type of cancer. The group provides members a safe, respectful, caring, and nonjudgmental environment to share questions, fears, and concerns they are experiencing as part of cancer. While prayer is part of each meeting, you do not have to be part of any church to attend. Contact person: Jim and Carolyn Greer and Pastor Kim Dancey Email: carolynsue40@comcast.net Location: Fithian United Methodist Church, 101 Clinton St., Fithian Phone: Jim and Carolyn Greer-(217 582-2517. Pastor Kim Dancey-(217) 620-5719 Schedule: Meets 2nd Monday at 6:30 p.m.
*Write: Cancer Prayer and Support Group, Fithian United Methodist Church, 101 E. Clinton St Fithian, IL 61844
Chronic Fatigue Syndrome
Champaign
Chronic Fatigue Syndrome Wellness Support (1995 F,L) This group provides only phone support for people suffering from chronic fatigue syndrome. Contact Person: Lisa Schicht Email: lisaenya25@global.net National Website: cfids.org Phone: (217) 355-1778
Crohn’s Disease and Colitis
Peoria
Crohn’s and Colitis Foundation of America – Peoria Affiliate (1989 A,L) This group provides support and education to people with Crohn’s disease or colitis. Family and friends are welcome. Free parking and educational materials are available. Contact person: Kathy Porter Email: jnkporter35@gmail.com Local Website: ccfa.org Location: 7th Floor, St Francis Medical Center, 530 N.E Glen Oak Ave, Peoria Phone: (847) 827-0404 Schedule: Meets 4th Thursday, 7:00-9:00 p.m. in February, April, June, August, and October.
Diabetes
Champaign
DiaBesties- Young Adult Diabetes Support Group (2016, F,P/L) This support group gives the young adult person with diabetes an avenue to share ideas and information on advances in the disease, as well as dealing with the fact that diabetes impacts all areas of one’s life. The American Diabetes Association standard of providing ongoing diabetes self-management support is provided in this group. For people 18 years and older. Contact person: Dori Purrachio RN, CDE Email: dori.puracchio@carle.com Location: Carle on Kirby, 1813 W. Kirby Avenue, Champaign Phone: (217) 383-3490 Schedule: Meets 2nd Tuesday, 5:30 p.m
Diabetes Support Group – Champaign (A,P/L) This group provides support and education for people with diabetes, their friends, and family members. Each month a speaker addresses issues related to managing diabetes. The group is designed to provide education, and emotional and social support. You do not have to be a Carle patient to attend, and no registration is necessary. Contact Person: Martha Trenkamp, RD, CDE Email: martha.trenkamp@carle.com Local Website: https://carle.org/Events/category/Support-Groups Location: Carle Champaign on Kirby, 1813 W, Kirby Ave, Champaign Phone: (217) 383-3490 Schedule: Meets 3rd Tuesday (except December), 7:008:00 p.m.
*Write: Martha Trenkamp, Carle Diabetes/Endocrinology Dept., 1813 W. Kirby Ave., Champaign IL 61821
Second Chance Transplant and Dialysis Support Group (1995 A,P/L) This support group is for people who have had or are considering any kind of organ transplant, or who are on dialysis. Contact Person: Jim McFarlin Email: jimmcfarlin@outlook.com Location: Baytowne Apartments Clubhouse, 1000 Bowtowne Drive Champaign IL Phone: (313) 670-7728 Schedule: Meets 1st Tuesday every month.
Ford
Diabetes Support Group – Gibson City (1996 F,P) This group is for people with diabetes and their family members. Contact Person: Eileen Woolums RN, BSN, CDE Email: Eileen_woolums@gibsonhospital.org Local Website: gibsonhospital.org Location: Gibson Area Hospital & Health Services Education Center, 209 E 8th St, Gibson City Phone: (217) 784-2459 Schedule: Meets 3rd Monday, (except Dec and Jan) at 6:30 p.m.
*Write: Eileen Woolums, Gibson Area Hospital and Health Services, 1120 N. Melvin St Gibson City IL 60936
Vermilion
Diabetes Support Group – Danville (F,P) This group is designed to provide emotional and social support and education to people with diabetes. A speaker at each meeting addresses issues related to managing diabetes. The group is free and open to the public, but space is limited. Preregistration is recommended. Contact Person(s): Tricia Hogg and Jean Land Local Website: https://carle.org/Events/category/support-groups Location: Danville Public Library 319 N Vermilion St., Danville Phone: (217)431-7601 Schedule: Meets 4th Tuesday (except November and December), 6:30-7:30 p.m.
Eating Disorders/weight management
Champaign
Overeaters Anonymous (OA) – Champaign County (1960 A,L) This 12-step, self-help group is for compulsive overeaters and people with anorexia or bulimia. Email: info@oa.org Local Website: https://region5oa.org/ National Website: oa.org Phone: (888)216-8458 for local meetings (automated message) or (505) 891-2664 for national office.
*Write: Overeaters Anonymous, P.O. Box 440202, Rio Ranch, NM 87174
TOPS (Take Off Pounds Sensibly)-Vermilion (1948, A,L) TOPS Club, Inc is a nonprofit organization dedicated to supporting members in achieving maintain a healthy weight. With chapters worldwide, TOPS focuses on promoting healthy lifestyles through weight management support groups and sponsoring obesity research. The organization provides educational materials on behavior change, nutrition and increased activity. Membership includes a magazine, and annual dues vary. Meetings are held in Coles, Dewitt, Douglas, Iroquois, Mclean, Piatt, and Vermillion Counties, For more information or to start a new chapter, visit the website or call Sharon Dines for assistance. Annual membership, which includes a member magazine, is $70 plus nominal chapter fees to cover operating expenses-usually less than $5 per month. Contact Person: Sharon Dines Email: sharondines712@yahoo.com National Website: www.tops.org Phone: (815) 471-2098
Ehlers Danlos Syndrome
Champaign
Ehlers Danlos Syndrome Support Group (2016 F,L) Anyone with a diagnosis of Ehlers Danlos Syndrome (EDS) is welcome. Contact Person: Deborah Royce Email: dlr4951@gmail.com National Website: http://www.chronicpainpartners.com/champaign-il/ Phone: (207) 251-5744
Epilepsy / Seizure Disorders
Champaign
Epilepsy Advocacy Network (2022) This group is for people with epilepsy or other seizure disorders and for their family and friends. Contact Person: Kristen Neaville and Epilepsy Advocacy Network Email: kristen@epilepsyadvoacynetwork.org Local Website: epilepsyadvocacynetwork.org Location: Carle South Clinic-6th floor Conference Room 602 W University Ave, Urbana IL Phone: Kristen-(217) 321-5842 and Epilepsy Advocacy Network (815)846-0881, Ext 700 Schedule: Meets 1st Tuesday of the month, 5:30-6:30 p.m.
Epilepsy Support Group (2003 A,P/L) This group is for people with epilepsy or other seizure disorders and for their family and friends. Contact Person: Kim Jassen and Epilepsy Foundation of Greater Chicago Local Website: epilepsychicago.org Location: Virtual Phone: Kim Jassen- (217)867-2485. Epilepsy Foundation of Greater Chicago- (312) 939-8622 Ext 215 Schedule: Meets 1st Monday, 6:30 p.m.-8:00p.m.
*Write: Leigh Schommer. Epilepsy Foundation of Greater Chicago, 17 N State St., Suite 650 Chicago IL 60602
Fibromyalgia
Champaign
Champaign-Urbana Fibromyalgia Education and Support Group (1990 A,L) This group provides support for anyone with fibromyalgia, and for their families and friends. Speakers are invited. Meetings include time for caring and sharing. Contact Person: Beth Beckett Email: mrsdb@att.net and sommer1@comcast.net Local Website: https://carle.org/Events/category/Support-Groups Location: Carle Champaign on Curtis 2nd Floor Conference Room National Website: arthritis.org Phone: (217) 898-1717 Schedule: Meets 3rd Wednesday, every month beginning in January 6:00-7:30 p.m.
*Write: Phyllis Sommer, 2103 Rainbow View Dr., Urbana IL 61802-5619
Gluten sensitivity
Ford
Gluten Free Living (2012 F,P) This support group provides answers to those whose lives are touched by celiac disease or gluten sensitivity. There is a licensed dietitian at each meeting to answer questions about diet. Contact Person: Benjie Pardick Email: Bemjie_pardick@gibsonhospital.org Location: Radiology waiting area of Gibson Area Hospital Phone: (217)784-2221 Schedule: Meets 3rd Tuesday, 6:00-7:30 p.m. *Write: Benjie Pardick, 1120 N. Melvin P.O. Box 429 Gibson City, IL 60936
Heart Disease
Champaign
Carle Cardiac Support Group (2013 F,P) This group is for cardiac patients, their families, and the public. At each meeting, there is a speaker followed by refreshments and time for people to share. Contact Person: Maggie Katherine Local Website: http;//carle.org/Events/category/Support-Groups Phone: Maggie-(217)904-7430, Katherine- (217) 904-7429 Schedule: Meets 4th Tuesday (2nd Tuesday in December) every other month 3:30-5:00 p.m. Feb, April, June, Aug, Oct, and Dec.
*Write: 611 W. Park St., Urbana IL 61801
Left Ventricular Assist Device (LVAD) Support Group (2015 F,P) This group is open to patients who have undergone LVAD surgery. Contact Person: Pam Moore Location: Heart and Vascular Institute Conference Room B, 611 W Park St. Urbana Phone: (217)904-7135 Schedule: Meets 3rd Thursday 4:00-5:30 p.m. (No regular meeting in November or December Christmas party Dec 10th).
Powerful Hearts (1997 F,P/L) This group offers help, support, and encouragement to heart disease patients and their families. The meeting allows time for sharing recovery and life experiences to aid in support during the healing phase and beyond for those living with heart disease. There is a visitor’s program to provide support for those hospitalized; training is provided. Contact Person: Alison Ball Location: Hearts of Mary, Limited number of participants allowed. Phone: (217) 337-2237 Schedule: Meets every six weeks
Iroquois
Lucky Hearts Support Group (1989 F,P) This group is for people with heart disease and their family members and significant others. Call to confirm a meeting. Contact Person: Marsha Hubert Email: marsha.hubert@imhrh.org Local Website: iroquoismemorial.com Location: 1st Fl.Conference Room, Iroquois Memorial Hospital Watseka Phone: (800) 242-2731 ext. 773 or (815) 432-7773 Schedule: Meets 2nd Tuesday, every other month beginning in February, 1:30 p.m.
*Write: Marsha Hubert, Iroquois Memorial Hospital, 200 E. Fairman, Watseka, IL 60970
Peoria
TOUCH – The Organization for Understanding Congenital Hearts (1985 A,P/L) This group empowers families, children, and adults who have congenital or acquired heart defects. The group makes a difference through emotional support, education, and public awareness. The group provides a ‘heartline’ phone support number, newsletter, and annual picnic. Local Website: touchhearts.org Phone: (309) 655-3419
Inflammatory Bowel Disease / Irritable Bowel Syndrome
Peoria
Crohn’s and Colitis Foundation of America – Peoria Affiliate (1989 A,L)This group provides support and education to people with Crohn’s disease or colitis. Family and friends are welcome. Free parking and educational materials are available. Contact Person: Kathy Porter Email: illinois@ccfa.org Location: 7th Floor St. Francis Medical Center, 530 N.E Glen Oak Ave, Peoria Phone: (847) 827-0404 Schedule: Meets 4th Thursday, 7:00-9:00 p.m. in Feb, April, June, Aug and Oct
Intersex
Peoria
Intersex Social and Support Group (2023, L) This Zoom group provides support to Intersex individuals, their families, and allies. Individual meetings are currently being offered as well as group meetings. Contact Person: Robbi Russell Email: Robbirussell00@gmail.com
Lupus
Peoria
Lupus Support Group of Central Illinois (1976 F,P/L) This group provides support, education, and research information to lupus patients, and to families, medical personnel, and the public. Call in advance in case of inclement weather. Contact Person: Kelly Erps Email: centrallupus@mailbug.com Location: Soderstrom Dermatology Center, Annex Bldg., 4909 N, Glen Park Place Peoria Phone: (309) 620-2935 Schedule: Meets 1st Monday, 6:00-8:00 p.m. March-December
*Write: Kelly Erps, Lupus Support Group of Central Illinois, P.O. Box 791, Pekin IL 61555-0791
Multiple Sclerosis (MS)
Champaign
Multiple Sclerosis Self-Help Support Group (1993 A,L) This group addresses issues for people living with multiple sclerosis and their family members. The group maintains an upbeat approach and provides support and education about multiple sclerosis. Literature available. Contact Person: Melissa Mills Email: savoymsgroup@yahoo.com Local Website: msillinois.org National Website: nationalmssociety.org Schedule: Meets 2nd Saturday (except Dec) 10:00 a.m.-12:00 p.m.
Piatt
Piatt County MS Support Group (1991 A,L) This group addresses the issues of people diagnosed with multiple sclerosis and of their family members. The group maintains an upbeat approach that includes support and education. Evening meetings are held quarterly. Call Paige for information on meeting dates and location. Contact Person: Paige Buck Email: kpbuck@hughes.net Phone: (217) 372-7831 or (217) 369-9276
Obesity
Champaign
Bariatric Support Group (2001 A,P/L) This group is for bariatric surgery patients, past, present, and prospective, and gives a chance to share ideas and concerns, talk about frustrations, celebrate successes, and hear others speak about their experiences. Contact Person(s): Ashley McCartney, Lindsey Eichelberger and Ann Carroll Email: ann.caroll@carle.com Local Website: https://carle.org/Events/category/Support-Groups Location: Carle Main Campus, South Clinic 5th Floor General Surgery Department, Urbana Phone: (217) 383-3240 Schedule: Meets 2nd Thursday, excluding Dec, 6:00-7:00 p.m.
*Write: Ann Carroll, Carle Champaign on Curtis, 1701 W. Curtis Rd., Champaign IL 61821
Overeaters Anonymous (OA) – Champaign County (1960 A,L) This 12-step, self-help group is for compulsive overeaters and people with anorexia or bulimia. Phone: (888) 216-858 for local meetings (automated message) or (505) 891-2664 for national office Email: info@oa.org National Website: oa.org
*Write: Overeaters Anonymous, P.O. Box 440202 Rio, Rancho NM 87174
TOPS (Take Off Pounds Sensibly) – East Central Illinois (1948 A,L) This group’s mission is to support members as they take and keep off pounds sensibly. Its two-fold objective is to encourage healthy lifestyles through weight management support groups and by sponsoring obesity research. TOPS publishes educational materials to help its members understand the dynamics of behavior change, good nutrition, and increased activity in developing a healthy new lifestyle. Annual membership, which includes a member magazine, is $32 plus nominal chapter fees to cover operating expenses – usually less than $5 per month. Contact Person: Sharon Dines Email: sharondines712@yahoo.com National Website: www.tops.org Phone: (815) 471-2098
*Write: Sharon Dines, 2353 N. 1250 East Road, Danforth IL 60930
Ostomy
Champaign
Ostomy Support Group (2015 A,P) This group provides support and resources for patients, family and friends of patients with a colostomy, ileostomy or urostomy. There is no need to be a Carle patient to attend. Contact Person: Leigh Kauwell Email: leigh.kauwell@carle.com Local Website: https://carle.org/Events/category/support-groups Location: Virtual National Website: ostomy.org Phone: (217) 326-4325 Schedule: Meets 3rd Wednesday 6:00-7:00 p.m.
*Write: Leigh Kauwell, Carle Wound Healing Center, 611 W. Park St., Urbana IL 61801
Parkinson’s Disease
Champaign
Parkinson’s Support Group (2013 F,L): The Parkinson’s Support Group of Champaign County meets every Monday, except Christmas Day from 10:00-11:00 a.m. Each meeting includes drumming, exercise and group discussion. Activities are led by volunteers and folks with Parkinson’s. There is also a support group for the caregiver which meets at the same time. We meet at Savoy Methodist Church, 3002 W. Old Church Road, Champaign Contact Person: Diane Kevin Phone: (815) 501-9695 Email: kevindianeha@gmail.com Schedule: Meets every Monday, 10:00-11:00 a.m. except holidays Location: Savoy United Methodist Church, 3002 W. Old Church Rd., Champaign in the Multipurpose Room.
Respiratory Disease / Emphysema
Champaign
Better Breathers Club of Champaign-Urbana (2000 A,P) This group is for people with chronic pulmonary disease and their family and friends. The group provides education and support to those living with lung disease that affects their daily quality of life. Contact Person: Sarah Moore Email: Sarah.moore@carle.com Location: Carle University West Building, Classroom B, 810 W. University Ave (corner of Lincoln Ave and University Ave). National Website: aacvrpr.org Phone: (217) 383-4558 Schedule: Meets 4:45 to 6:15 p.m. 2nd Tuesday
*Write: Sarah Moore, Carle Foundation Hospital, Pulmonary Rehabilitation, 810 W. University, Urbana IL 61801
Macon
Breath of Life Club, Decatur (1970 A,P) This group helps people with chronic obstructive pulmonary disease (COPD) and their families learn to live a more complete life. COPD includes emphysema, chronic bronchitis, and restrictive pulmonary disease (CHF, pulmonary fibrosis, sarcoidosis, and asthma). The group always has a speaker and respiratory therapists from the Pulmonary Clinic who are available to answer questions. Lunch or refreshments are served. Valet parking is provided. Contact Person: Cheryl Shipley Email: Cheryl.shipley@hshs.org Location: St. Mary’s Hospital Room 561, 1800 E. Lake Shore Dr., Decatur Phone: (217) 464-2603 Schedule: Meets 3rd Tuesday, March-November, 12:00-1:15 p.m.
*Write: Cheryl Shipley St. Mary’s Hospital, 1800 E. Lake Shore Dr., Decatur IL 62521
Vermilion
Better Breathers Support Group – Danville (2015 A,P) This support group is for people with chronic pulmonary disease. The group provides education and support to those who live with chronic lung disease that affects their quality of life. Meetings provide support, education, and social opportunities for people with chronic lung disease and their families. Contact Person: Amy Costa and Kim Hernandez Email: amy.costa@carle.com Local Website: https;//action.lung.org/site/TR?fr_id=17171&pg=entry Location: Danville Public Library 319 N. Vermilion St Danville National Website: lung.org Phone: Amy – (217)431-7996, Kim-(217) 474-3921 Schedule: Meets 2nd Thursday every other month 4:00-5:00 p.m. Feb, Apr, June, Aug, Oct, and Dec.
Sleep Apnea
Iroquois
Rest Easy – CPAP Users Support Group (1995 F,P) This group is for people who use CPAPs (continuous positive airway pressure machines) and their families. Contact Person: Jody Wolford, Respiratory Therapist, Iroquois Home Care Email: jaime.ortega@iroquoishomecare.com Location: Iroquois Home Care, 200 N Laird Lane. Watseka Phone: (815) 432-7794 Schedule: Meets quarterly, 3rd Wednesday
*Write: Rest Easy Support Group, Iroquois Home Care 200 N Laird Lane, Watseka IL 60970
Spina Bifida
McLean
Central Illinois Spina Bifida Support Group (2000 A,L) The Illinois Spina Bifida Association works to improve the quality of life of children, adults, and families living with spina bifida. ISBA’s programs are available to anyone living with spina bifida in Illinois. There are no membership requirements. Programs are available at no- or low-cost. Contact: Illinois Spina Bifida Association Email: infor@a-sba.org Local Website: 1-sba.org Phone: (773) 444-0305
Spinal Cord Injury
Macon
Spinal Cord Injury Patients (S.C.I.P.) Support Group (2015 F/L) This support group for disabled individuals offers support and information to persons who have suffered a spinal cord injury. Provides medical equipment to people who are in need such as electric wheelchairs, walkers, shower chairs, canes, toilet chairs, manual chairs, etc. Free of charge. Please call or email for meeting time and location. Contact Person(s): Cathy Dyer and Jeff Brinkley Email: cathy2004survivor@yahoo.com and jeffbrinkley@rocketmail.com Phone: Cathy- (217) 848-8989 Jeff- (217) 419-8855 Write: 1340 W Semor Drive, Decatur IL 62521
Stroke / Aphasia
Champaign
Brain Injury Support Group of East Central Illinois (1990 A,P) This group provides support and education individuals who have sustained a traumatic brain injury or acquired brain injury (such as brain tumor, aneurysm, stroke, encephalopathies), as well as to the family members/caregivers. Call to confirm dates and times of meeting and events. Contact Person: Dawn Henry and Brain Injury Association of Illinois Email: dawn.henry@carle.com and info@biail.org Local Website: https://carle.org/Events/category/Support-Groups Phone: Dawn- (217) 383-6423, Brain Injury Association of Illinois- (800) 699-6443 Schedule: Meets 2nd Saturday 10:30 am -12:30 pm. Location: Houseworth Conference Room., 2nd Floor, Carle Mills Cancer Center, 611 W University Ave., Urbana National Website: biausa.org
*Write: Dawn Henry, Rogers 3 Rehab Carle Foundation Hospital, 611 W. Park St, Urbana IL 61801
Stroke Survivors Group: This group offers discussions regarding topics that affect stroke patients and their support persons. Meetings in Auditorium C first Wednesday of each month at OSF Sacred Heart Medical Center Urbana Campus. Contact Person: Beth Romine Email: bdromine322@gmail.com Format: In person Location: Meetings in Auditorium C at OSF Sacred Heart Medical Center Urbana Campus. 1400 W Park Illinois, Urbana 61802 Phone: (217) 337-4550 Schedule: Meets 1st Wednesday of the month from 3:00-4:30 p.m.
Stroke Support Group (1981 A,P) This group brings together stroke survivors and their caregivers for mutual help, fellowship, education, and service to others. Contact Person(s): Beth Romine and Amy Email: Rachel.calvin@osfhealthcare.org Location: OSF Heart of Mary Medical Center. 1400 W Park St Urbana Phone: Beth (217) 337-4550, Amy (217) 337-2202 Schedule: Meets 1st Wednesday, 3:00-4:30 p.m. (call for meeting room)
Piatt
Stroke Support Network (2012 F,P) This group provides support and understanding to individuals dealing with the many physical and emotional challenges that a stroke creates. Members support each other as they learn to cope with new challenges in their own way and to find positive solutions to gain independence. Individuals who have experienced a stroke or TIA are encouraged to attend. Contact Person: Leanne Griffin Email: lgriffinfia@yahoo.com Location: Maple Point Supportive Living Education, 1000 N Union Monticello Phone: Faith in Action (217) 762-7575 ext 2 Schedule: Meets 4th Tuesday, 1:00p.m.-2:00p.m.
Vermilion
Illiana Stroke Survivors and Caregivers (1990 A,P/L) This group provides education and social support for survivors of stroke and for their caregivers. Meets 2nd Sat., April-Nov., 10:00 a.m., Immanuel Lutheran Church, 1930 N. Bowman Ave., Danville. There is also a summer picnic and a Sept. cookout. Contact Person: Leanne Griffin Email: lgriffinfia@yahoo.com Location: Maple Point Supportive Living, Education, 1000 N Union Monticello Phone: Faith in Action (217) 762-7575 ext 2 Schedule: Meets 4th Tuesday, 1:00 p.m.-2:00p.m.
Transplants
Champaign
Leukemia/Lymphoma/Myeloma/Transplant Support Group (2007 F,L) This group provides support and education to patients, family members, and friends. Meetings are scheduled based on the needs of the group members. Call for meeting time and location. Contact Person: Mica Witt and Dan Culkin Email: wittmi@frontier.com Phone: Mica-(217) 586-1667 and (217) 898-1018, Dan- (217) 893-0362
Second Chance Transplant and Dialysis Support Group (1995 A,P/L) This support group is for people who have had or are considering any kind of organ transplant. Contact Person(s): Frank Veach and Alissa Young Email: frankveach@hotmail.com Location: Presence Covenant Medical Center, Auditorium A, B, or C, 1400 W Park St., Urbana Phone: Frank-(217) 530-2390, Alissia- (217) 328-4100 Schedule: Meets 1st Tuesday, 6:00 p.m.
A: Affiliated with a state, national or international group
F: Freestanding group
L: Lay run/organized group
P/L: Professional and lay persons share facilitation/organizational roles in group
P: Professional facilitates and/or organizes group meetings